A two-year-old described as a “bundle of energy” has been diagnosed with a rare form of childhood dementia, and now her parents fear that “time is running out to save her life.” Only one week before her second birthday, little Leni Forrester was diagnosed with Sanfilippo Syndrome Type B, a rapid neurodegenerative condition also known as childhood dementia. Her parents, Emily, 33, and Gus, 35, said they were completely blindsided by the diagnosis: “We didn’t have any concerns at all about Leni,” the Kent mother told the Mirror, describing her daughter as “sunshine.” ‘Catastrophic genetic condition’ The first indication that something might be...
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